Lily went to her first day of Kindergarten, only to wake up the next morning with a high fever. By the end of the week, the fever had persisted, and we were in the Pediatric Intensive Care Unit. By the weekend, Lily had been diagnosed with ALL (Acute Lymphoblastic Leukemia) . Once we got home from the hospital, and began to digest this curveball that was just thrown at us we came across the Hopecam paperwork that was given to us in the hospital. In short order, Hopecam had sent us an Amazon fire, as well as worked with Lily’s school to get a camera setup in her classroom. Lily could video conference into her classroom, and feel included in reading time with her classmates. Now that Lily has started to go back to school, her Hopecam experience proved to be instrumental in an easy transition back to school. Even though she had only been to one day of school prior to her diagnosis, she was able to stay connected with her class, and transition back into the classroom with relative ease.
Lily uses Hopecam a lot during the school week. Hopecam has really helped her create friendships and continue her education without falling behind or compromising her immune system. Hopecam has made Lily feel less isolated and has alleviated some of the apprehensiveness that appears when she is able to physically be in the classroom. We are so grateful to her Elementary school and her teacher for their willingness to participate in Hopecam. Lily was so excited to start kindergarten this year and having that taken away has been a challenge. She has questioned why she is "different" and this program has really given her a sense of normalcy. Lily is also learning how to spell and loving it! Keeping her stimulated is key!
Another special thing is that Lily decided for every card or gift she received, she would send a letter (learning how to write has come in handy!) and a coloring to an orphan in India. Her letters were recently hand delivered by her youth pastor at church. Hopecam had been an extremely helpful tool in January and February 2017, as Lily was in the Delayed Intensification phase of treatment. Lily is a social butterfly and we had comfort in knowing that she had Hopecam during this tough phase of treatment. We are excited for Lily to join Mr. Fumich on his trip to Antarctica and are thankful for his efforts to raise $10,000 for Hopecam.
-Jennifer, parent of Lily