Ava was our fun-loving, sweet, smart and spunky 9-year-old girl who lit up every room she entered. Ava loved adventure, in fact, Ava inspired our family saying, “You know it’s going to be fun if you have to sign a waiver.” The day after the Cub’s won the World Series all our lives changed forever. November 3, 2016 our DIPG journey began. Ava endured countless trials and difficulties that no child should have to face. She stepped up like a Warrior and endured this entire process, while consistently claiming to all of us, “there is nothing wrong, I’m fine.” Ava was a Warrior right up to her last moments and we saw a miracle because of her. The miracle of community pulling together for a common good in acts of charity and kindness.
Most importantly the miracle of how Ava lived her life and the valuable lessons she taught us in her short nine years on earth. Ava was a Warrior from the very beginning not just in this battle. She taught us that when you are going to do something, do it fully committed and until the end. Do not be afraid. Give everything a chance. Life shouldn’t be that serious, and to choose to have fun in all things you do. She taught us that loving everyone and everything is more important than our differences. Lastly, and maybe most importantly she taught us that a true Warrior fights for something in perfect love and we know that “perfect love drives out all fear!” -1 John 4:18. We saw the miracle of a sweet, feisty and loving girl bring a nation of people together in prayer and positive thoughts and has inspired us to form the Ava Warriors Foundation.
During Ava’s time here, Hopecam was instrumental in keeping Ava both socially and mentally connected with her peers during this most difficult of times. Hopecam is great technology for children who are battling a life circumstance such as childhood brain cancer and more specifically in Ava's case DIPG. Thank you Hopecam.
-Ken, parent of Ava